If like me, standard thyroid medication - levothyroxine - does not work for you 'cos you don't convert to T3 and so when saying how ill you still feel to your doctor and reel off the symptoms, your doctor greets you with
" I wish you women wouldn't keep blaming your thyroid for everything. Just look at your age? And your menopausal!" and ushers you out the door" you feel like screaming.
So I have to pay privately for diagnostic tests and get them interpreted privately and pay for all my medication which includes importing T3 from USA or Canada because most doctors won't prescribe it as it is now unlicensed (though pre 1985 was used for everyone). Being unemployable (due to my health) affording my medication isn't always possible.
Dr. Skinner is one of the few doctors that was hauled before the GMC years ago for doing just that .. listening to his patients, treating them and their symptoms, not just the blood test results but by listening and seeing for himself what they are like and giving them the medication that would enable them to live as near normal a life as possible. For this he was originally punished by the GMC.
Dr. Skinner had a GMC hearing few days ago. He has been reinstated, fully exonerated and the GMC allows him to prescribe the very medication he was original told not to. This is the biggest news ever for all thyroid patients, the world over really, to show that now any doctor can prescribe T3 (armour) to patients if that is what is required, even though it is not licensed. Unforuntately one paper reported the hearing not very well, so the Thyroid Patient Group UK has sent out a general press release which can be read here http://www.tpa-uk.org.uk/drskinner_exonerated_press_release.php and if anyone wants to read the minutes of the hearing they can be downloaded (.pdf) here http://www.tpa-uk.org.uk/drskinner_minutes_%20november_2011.pdf
Any doctors reading this - please read the links and if you have any patients who when taking thyroxine are still reporting they are ill, then please listen? Get not just their T4 checked but T3 also - prescribe T3 if necessary. I have been ill with this for 10 years and no more treatment on the NHS as according to my doctor there is nothing wrong with me. Had a private T3 test done (24 hour urine) and it comes back as reading 323 pmol ( normal range 592-1850) so well below normal. Yet as far as my doctor is concerned there is nothing wrong with me because NHS only say to do T4 test.
Dr. Skinner being exonerated is the news of the decade as far as thyroid patients are concerned. It is great news indeed.
What is so annoying is that pre 1985 Armour thyroid medication was the only medication used. It contained both T3 and T4. Then a cheaper synthetic thyroid T4 only was manufactured at a fraction of the cost, so Armour was unlicensed and people have suffered ever since.
Hopefully now, Doctors will sit up and listen and realise they can now treat their patient for the symptoms not just blood test results and not fear getting reprimanded by the GMC.
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